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Misdiagnosis Episodes

Aug. 1, 2024

Connective Tissue Disorders and Lipedema with Karen Herbst, MD (Ep 10…

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, hosts an enlightening discussion with Dr. Karen Herbst, a leading expert on lipedema and other adipose connective tissue diseases. Dr. Herbst shares her extensive knowledge on …

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May 30, 2024

Milestones and Reflections: 100 Episodes of Bendy Bodies with Linda B…

Dr. Linda Bluestein celebrates 100 episodes of Bendy Bodies discussing the most rewarding part of hosting the podcast and the challenges of podcasting. She emphasizes the importance of balancing the complexity of EDS and the ...

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May 23, 2024

99. From News Anchor to Advocate: A POTS and EDS Journey with Summer …

Summer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey. She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural O...

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May 16, 2024

98. Environmental Triggers of Mast Cell Disease with Tania Dempsey, MD

*Please note that I misspoke during the introduction saying ME/CSF rather than ME/CFS. "CSF" is pretty hard wired in my brain after years and years as an anesthesiologist. Thank you for your understanding. Dr. Tania Dempse...

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May 9, 2024

97. Learning to Spot the Signs of Ehlers-Danlos Syndromes with Guest …

In this special “EDS Awareness Month” episode of the Bendy Bodies Podcast , founder Dr. Linda Bluestein and guest host Kate Colbert discuss how everyone can learn to spot the signs of Ehlers-Danlos Syndromes. Dr. Bluestein em...

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Feb. 15, 2024

90. Decoding Brain Fog: Expert Insights with Ilene Ruhoy, MD, PhD

In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about decoding brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks. She explains how these conditions contribute …

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Jan. 18, 2024

86. The Unfair EDS Journey with Amanda Cassil, PhD

In this episode, Dr. Amanda Cassil discusses the unfair EDS journey. She covers the importance of self-advocacy in healthcare and provides strategies for effectively communicating with healthcare providers. She emphasizes the need for patients to slow down, regulate their nervous …

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Jan. 11, 2024

85. Making a MCAS Documentary with Drs. Weinstock, Dempsey, Bluestein…

The Bendy Bodies with the Hypermobility MD podcast episode unfolds a substantive conversation among esteemed healthcare professionals actively engaged in a comprehensive initiative centered around Mast Cell Activation Syndrome (MCAS), Dysautonomia, and Hypermobility Spectrum Disorders (HSD). This multifaceted endeavor encompasses …

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Jan. 4, 2024

84. Slipping Rib Surgery in EDS with Adam Hansen, MD

In this episode of the Bendy Bodies with the Hypermobility MD podcast, Dr. Adam Hansen discusses slipping rib surgery, slipping rib syndrome and other chest wall disorders. He covers their relationship to skeletal hypermobility, evaluation and diagnosis, symptoms and impact, …

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Dec. 14, 2023

82. The Impact of Clinician-Associated Trauma on EDS and HSD with Col…

Dr. Halverson discusses his research on the diagnostic odyssey and clinician-associated trauma on EDS. He highlights the challenges faced by patients, including the antagonistic relationship with healthcare professionals and the impact of self-doubt. Dr. Halverson emphasizes the importance of finding …

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Nov. 30, 2023

80. A Multidimensional Approach to EDS and HSD Care with Dacre Knight…

In this episode of the Bendy Bodies Podcast, a multidimensional approach to EDS and HSD care is discussed with guest, Dacre Knight, MD. Dr. Knight discusses his background and the multidisciplinary clinic at Mayo Clinic for hypermobility syndromes. He explains …

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Nov. 16, 2023

79. Gastrointestinal Problems in Hypermobile EDS: Learning to Treat a…

In this episode of the Bendy Bodies Podcast, gastrointestinal problems in EDS (Ehlers-Danlos Syndromes) is discussed with guest, Leonard Weinstock, MD. Dr. Leonard Weinstock discusses the connection between inflammation and restless leg syndrome, the prevalence of gastrointestinal symptoms in EDS …

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Nov. 9, 2023

78. Uncovering Inequality in Healthcare with Brianna Cardenas, DMSC, …

In this episode, Dr. Linda Bluestein interviews Dr. Brianna Cardenas, a physician's assistant and certified athletic trainer, about inequality in EDS healthcare, the importance of diversity, and inclusion in healthcare. They discuss the impact of medical racism and the need …

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Nov. 2, 2023

77. Neurosurgical Insights from Paolo Bolognese, MD and Guest Cohost …

Episode 77 covers neurosurgical insights for EDS Patients. Dr. Paolo Bolognese, a neurosurgeon specializing in EDS and related conditions, shares his journey and expertise in this conversation. He discusses the evaluation and diagnosis of EDS and craniovertebral instability, highlighting the …

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Oct. 19, 2023

76. Orofacial Pain with Robinson-Smith, DDS

Dr. Linda Bluestein interviews Dr. Julie Robinson-Smith about jaw pain and temporomandibular disorders (TMD). They discuss the difference between TMD and TMJ, the importance of understanding TMD for everyone, and the prevalence of jaw joint problems in the general population. …

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