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Patient Stories Episodes

Oct. 31, 2024

My Life With EDS | Office Hours (Ep 117)

In "My Life With EDS", a personal solo episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, opens up about her journey from aspiring ballet dancer to renowned hypermobility expert. Dr. Bluestein shares her struggles with joint …

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Oct. 24, 2024

Tarlov Cysts Truths with my Surgeon, Dr. Frank Feigenbaum (Ep 116)

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, reconnects with her neurosurgeon, Dr. Frank Feigenbaum, who performed her Tarlov cyst surgery in 2011. Dr. Feigenbaum, a leading expert in Tarlov cyst treatment, shares the …

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Aug. 29, 2024

Overcoming Pain in EDS: Building Stronger Bodies with Whealth Founder…

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, chats with Katie and Andrew Dettelbach, founders of Whealth, a program dedicated to helping people with hypermobility and chronic pain. Both Katie and Andrew have hypermobile …

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Aug. 15, 2024

Group Rehabilitation for POTS with Emily Rich, OT (Ep 106)

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with Emily Rich, an occupational therapist specializing in POTS (Postural orthostatic tachycardia syndrome), Ehlers-Danlos syndromes, and other chronic conditions. Emily, who is also a …

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Aug. 8, 2024

Understanding the Brain's Role in Chronic Pain with Kaitlin Touza, Ph…

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, engages in an enlightening conversation with Dr. Kaitlin Touza, a renowned pain psychologist. Dr. Touza delves into the complexities of chronic pain, explaining how the nervous …

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Aug. 1, 2024

Connective Tissue Disorders and Lipedema with Karen Herbst, MD (Ep 10…

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, hosts an enlightening discussion with Dr. Karen Herbst, a leading expert on lipedema and other adipose connective tissue diseases. Dr. Herbst shares her extensive knowledge on …

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July 18, 2024

Examining The Future of EDS Diagnosis and Care with EDS Society CEO L…

In this episode, Dr. Linda Bluestein, the Hypermobility MD, hosts a captivating conversation with Lara Bloom, President and CEO of the Ehlers-Danlos Society. Lara shares her journey in advocating for rare diseases, the progress made in Ehlers-Danlos syndromes (EDS) and …

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May 23, 2024

99. From News Anchor to Advocate: A POTS and EDS Journey with Summer …

Summer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey. She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural O...

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Dec. 21, 2023

83. Expert Insights: Breath Work in Pain Management with Jill Miller

In this episode, Dr. Linda Bluestein interviews Jill Miller, author of the book 'Body by Breath: The Science and Practice of Physical and Emotional Resilience.' They discuss the inspiration behind the book and its organization. They also explore why bendy …

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Nov. 9, 2023

78. Uncovering Inequality in Healthcare with Brianna Cardenas, DMSC, …

In this episode, Dr. Linda Bluestein interviews Dr. Brianna Cardenas, a physician's assistant and certified athletic trainer, about inequality in EDS healthcare, the importance of diversity, and inclusion in healthcare. They discuss the impact of medical racism and the need …

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Nov. 2, 2023

77. Neurosurgical Insights from Paolo Bolognese, MD and Guest Cohost …

Episode 77 covers neurosurgical insights for EDS Patients. Dr. Paolo Bolognese, a neurosurgeon specializing in EDS and related conditions, shares his journey and expertise in this conversation. He discusses the evaluation and diagnosis of EDS and craniovertebral instability, highlighting the …

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Oct. 12, 2023

75. Cervical Instability: Thinking Beyond the Neck with Patty Stott, …

In this episode, YOUR guest is Patricia Stott, DPT , physical therapist with expertise in Ehlers-Danlos Syndromes and related conditions. Dr Stott and Dr Bluestein presented together on integrative approaches to pain managem...

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Oct. 5, 2023

74. Podcast Secrets and Sneak Peeks with Guest Host Kate Colbert

In this Bendy Bodies podcast episode, guest host Kate Colbert interviews Dr. Linda Bluestein about the evolution of her hypermobility EDS podcast (Ehlers-Danlos Syndromes). They discuss Dr. Bluestein's career trajectory, her transition from aspiring dancer to anesthesiologist to EDS expert, …

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Aug. 31, 2023

73. Understanding Lower Extremity Pain with Pradeep Chopra, MD

The lower extremities must bear the weight of our whole bodies. Problems in the hip may cause a chain reaction of aches, imbalances, or chronic issues that could manifest in the knee, ankle, or somewhere else along the kineti...

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Aug. 17, 2023

72. Examining Upper Extremity Pain with Pradeep Chopra, MD

Joints of the upper extremity (eg: shoulders, elbows, fingers, etc) can be prone to subluxation and dislocation in those with joint hypermobility and/or joint instability. As we continue our discussions on common causes of pa...

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