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Dysautonomia & POTS (Postural Orthostatic Tachycardia Syndrome) Episodes

Nov. 28, 2024

MCAS Perspectives - Personal and Professional | Office Hours (Ep 121)

In this candid solo episode of the Bendy Bodies podcast, I share my insights into Mast Cell Activation Syndrome (MCAS) and its intricate connection to hypermobile Ehlers-Danlos Syndrome (hEDS) and Postural Orthostatic Tachycardia Syndrome (POTS). Reflecting on my personal experiences …

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Nov. 7, 2024

Biomarkers - Are we Close? with Dr. Clair Francomano (Ep 118)

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, has an in-depth conversation with Dr. Clair Francomano, a leading expert on connective tissue disorders and Chair of the Medical and Scientific Advisory Board for the …

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Aug. 15, 2024

Group Rehabilitation for POTS with Emily Rich, OT (Ep 106)

In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with Emily Rich, an occupational therapist specializing in POTS (Postural orthostatic tachycardia syndrome), Ehlers-Danlos syndromes, and other chronic conditions. Emily, who is also a …

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June 6, 2024

101. Breaking the Vicious Cycle of Chronic Illness with Ashok Gupta

In this conversation, Dr. Linda Bluestein interviews Ashok Gupta about his experience breaking the vicious cycle of chronic illness when he had ME-CFS. They discuss the impact of chronic conditions, the brain's priority of s...

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May 23, 2024

99. From News Anchor to Advocate: A POTS and EDS Journey with Summer …

Summer Dashe, a former news anchor and advocate for the chronically ill, shares her POTS and EDS journey. She covers how she manages her symptoms in everyday life and the challenges of getting diagnosed with POTS (Postural O...

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Feb. 15, 2024

90. Decoding Brain Fog: Expert Insights with Ilene Ruhoy, MD, PhD

In this episode, Dr. Linda Bluestein interviews Dr. Ilene Ruhoy about decoding brain fog, as well as its relationship to various conditions such as mast cell activation syndrome, craniocervical instability, dysautonomia, and CSF leaks. She explains how these conditions contribute …

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Feb. 8, 2024

89. Conquering the Sleep Struggle with Roger Seheult, MD

In this conversation, Dr. Linda Bluestein discusses conquering the sleep struggle with Dr. Roger Seheult, a quadruple board-certified physician with expertise in sleep medicine. They cover topics such as challenges of working from home, sleep schedules and chronic illness, shifting …

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Jan. 11, 2024

85. Making a MCAS Documentary with Drs. Weinstock, Dempsey, Bluestein…

The Bendy Bodies with the Hypermobility MD podcast episode unfolds a substantive conversation among esteemed healthcare professionals actively engaged in a comprehensive initiative centered around Mast Cell Activation Syndrome (MCAS), Dysautonomia, and Hypermobility Spectrum Disorders (HSD). This multifaceted endeavor encompasses …

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Nov. 30, 2023

80. A Multidimensional Approach to EDS and HSD Care with Dacre Knight…

In this episode of the Bendy Bodies Podcast, a multidimensional approach to EDS and HSD care is discussed with guest, Dacre Knight, MD. Dr. Knight discusses his background and the multidisciplinary clinic at Mayo Clinic for hypermobility syndromes. He explains …

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Nov. 16, 2023

79. Gastrointestinal Problems in Hypermobile EDS: Learning to Treat a…

In this episode of the Bendy Bodies Podcast, gastrointestinal problems in EDS (Ehlers-Danlos Syndromes) is discussed with guest, Leonard Weinstock, MD. Dr. Leonard Weinstock discusses the connection between inflammation and restless leg syndrome, the prevalence of gastrointestinal symptoms in EDS …

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Aug. 31, 2023

73. Understanding Lower Extremity Pain with Pradeep Chopra, MD

The lower extremities must bear the weight of our whole bodies. Problems in the hip may cause a chain reaction of aches, imbalances, or chronic issues that could manifest in the knee, ankle, or somewhere else along the kineti...

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Aug. 17, 2023

72. Examining Upper Extremity Pain with Pradeep Chopra, MD

Joints of the upper extremity (eg: shoulders, elbows, fingers, etc) can be prone to subluxation and dislocation in those with joint hypermobility and/or joint instability. As we continue our discussions on common causes of pa...

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July 20, 2023

71. Examining Head, Spine, and Chest Pain with Pradeep Chopra, MD

Connective tissue runs throughout your body, surrounding and connecting every system. This is what makes treating issues that arise from connective tissue disorders so difficult: when everything is connected, it’s hard to fin...

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June 29, 2023

70. Examining Abdominal Pain with Pradeep Chopra, MD

Abdominal pain is an extremely common finding in people with connective tissue disorders, like Ehlers-Danlos Syndromes (EDS). Similar to other issues patients face with EDS or Hypermobility Spectrum Disorders (HSD), getting ...

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June 8, 2023

69. Traveling with a Chronic Disorder with Dr. Linda Bluestein, Krist…

Travel comes with a lot of uncertainty: flights get canceled, hotel reservations are lost, luggage never turns up. But add the complications of traveling with a chronic disorder like Ehlers-Danlos Syndrome, and voyaging becom...

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