WELCOME TO BENDY BODIES, WHERE YOU’LL FIND MEDICAL INSIGHTS & SCIENCE-BASED INFORMATION FOR EVERY BENDY BODY. LISTEN, LEARN, & SHARE!

Reviews

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Cynthia Bahmani, Certified Pilates Instructor
This podcast is incredibly informative and helpful to the Hypermobile audience and beyond. The pelvic floor and Testosterone episodes were relevant and so chock full of nuggets, I had to pause several times to properly absorb it all. I love recommending this podcast to my dancer students as well as my Pilates clients alike. Thank you and keep going!

Bending my brain the right way way 👌
Having to navigate a new diagnosis of EDS in the UK NHS is pretty diabolical as they don’t recognise it well enough yet. I’m glad for the services provided for the symptoms but as the clinicians are not clued up, they can’t educate me as someone who has it. Bendy bodies fills that void. It provides professional advice at multiple levels, ensuring it’s technical and bough for practitioners to learn how best to navigate this condition for/with their patients, with plenty of signposting for further info and resources. However, you also provide evidence based, comprehensive information for those with the condition in laymen’s terms. Not condescending to them, but giving them an understanding of their bodies in terminology that makes sense to everyone. You step over that academic/professional pomposity that so many have, to do what most meant to, to help those who need it. Excellent podcast. Fantastic presenter. Amazing resource for the likes of me, floating in a sea of chronic illness I now understand a little better, how to navigate. 👌🦓❤️

Evidence Based Info!
The subject matter is relevant, the content is peer-reviewed, and the guests are reputable. Not sure you can ask for more in the EDS society! Doing a deep dive into these episodes is an effective method to really learning about how to care for your EDS, which is so much more than a bendy body as we all know. Love how this brings to light issues and relevant concerns beyond the Beighton score.

Wonderful resource for both patients and providers!
Really love the wide range of guests this podcasts hosts- it has been really valuable for gaining different perspectives and insights. The information is superbly helpful, and its so wonderful that there is a consolidated bank of information that we can look to!

Great Info for Zebras!
I really appreciate this podcast as someone diagnosed with the trifecta!

Diagnosis Bingo
I feel so seen! Having just received an EDS & MCAS diagnosis following a MALS diagnosis at age 37, everything I’ve been experiencing is finally starting to make sense. Thank you for educating us on why!

Excellent Show
The Bendie Bodies Podcast has been a lifesaver in navigating complex medical challenges. The expert insights and practical tips are invaluable, empowering me to better support my loved one and advocate effectively. Thank you for creating such a thoughtful and supportive resource for the bendie community!

Thankful
So grateful this podcast for EDS patients. Access to this type of information from different experts is so helpful and inspiring!

Incredible resource for those with hypermobility and comorbid conditions
I have been a long time Bendy Bodies listener and absolutely love this podcast. It’s an amazing resource for anyone who might be struggling with hypermobility - there is something to learn in every episode. As someone managing hEDS/MCAS/POTS, I love the wide range of topics the podcast covers and the depth of information. It’s been so helpful for me! Dr. Bluestein’s solo episodes are also incredibly valuable as is her perspective as a medical professional.

Embracing flexibility: in our lives and as a hypermobile provider
I am incredibly thankful to have found the Bendy Bodies Podcast! As both a mobility specialist working with hypermobile individuals and someone living with hEDS, this podcast has been an invaluable resource. The information shared by Dr. Bluestein and her expert guests has provided me with practical tools to better support my bendy clients and confidently refer out when necessary. On a personal level, listening to this podcast has been a deeply validating experience in a world where medical gaslighting is all too common. I highly recommend Bendy Bodies to anyone seeking a deeper understanding of hEDS and HSD—whether for their own medical journey or to better serve clients and patients. Ashley Rogers, FRCms

Great podcast for all things hypermobility from a PT
As a Doctor of Physical Therapy, I enjoy listening to this informative podcast for all sorts of hypermobility-related topics. I am a hypermobile individual with multiple autoimmune disorders, and I specialize in treating hypermobility and EDS. It’s great to hear current research from MDs who are leaders in this field. I also enjoy the dance related episodes as I treat many aerialists. Thank you for providing this high quality, evidence based content!

A gift of knowledge and compassion to patients and professionals alike!
The Bendy Bodies podcast has empowered and encouraged me as a patient and professional in more ways than I can describe! Thank you for your generosity, compassion, and hard work in bringing so much visibility to connective tissue disorders!

Lifesaver
This podcast is a lifesaver for me as a mom navigating my teenage daughter’s hypermobility and all the related conditions. Thank you for putting this information together and helping people live their fullest lives.

A sanity saver
This podcast is a wonderful resource and Dr. Bluestein is a wonderful presenter. I wish it had been available thirty years ago. Finding this podcast finally provided me with some insight into hEDS/MCAS/HIT and continues to help me find ways to manage these complex conditions.

Highly recommended to my patients
As a registered dietitian nutritionist who works with a variety of patients including those with EDS/HSD (you can find me on the ESD Society website), I find this podcast to be a helpful resource for them! It is also extremely helpful for myself as someone with the condition. It's also important for my patients to know that there are clinicians and scientists out there who care and who are working hard to uncover the best pathway forward for EDS/HSD patients. Thank you to Dr. Bluestein for bringing everyone together on this podcast.

Useful Research In Layman’s Language
Bendy Bodies is an amazing podcast! I’ve been listening since the beginning. I especially enjoyed the interviews with Dr Chopra. He has so many hacks he loves to share! If you have EDS or another type of hypermobility disorder, be informed- this is your go-to source for EDS and all its comorbidities.

Best podcast for EDS
I have learned so much about myself from listening to this podcast. I tell everyone I know with EDS and other comorbidities about this show. Thank you for creating this content.

Great information
Love this podcasts, especially the episodes with Dr. Chopra! So informative! I recommend it to my own patients for education.

EDS listener from the UK
Thank you so much for this podcast and all the wonderful and helpful advice and stories. I feel less alone now.

Tremendous podcast
This provides a host of useful information for us bendies. So much good stuff here. Thank you doctor x

One of my favorite EDS/HSD resources
Excellent quality, excellent speakers and wonderful host. I refer my HSD/EDS patients to this podcast frequently. I also refer many other patients to specific episodes that would be relevant to their needs. Bendy Bodies is a favorite driving companion of this family doc!

The most comprehensive and brilliant talk about Sleep
Dr. Roger Seheult astounded me with so much pertinent information that he was able to explain in a way that my Foggy Brain was able to absorb many little (big actually)gems of information and advice. Since 2011 I have had at least 5 to 6 in lap sleep studies, as well as 2 to 3 at complete home sleep studies and another 2 to 3 oxygen saturation only sleep studies. I have many sleep related diagnoses and I’m thrilled to have learned so much that I can start to incorporate into my daily living to improve the quality of my sleep. Thank you so much Dr. Seheult! I have already subscribed to your YouTube channel and plan on sending my loved ones the link to this podcast. Anyone and everyone can benefit from learning more about this super important topic. Thank you Dr. Bluestein for continuing to have such amazing people on your Podcast helping both other healthcare professionals and fellow Zebras in so many ways. You are a blessing and a gem. Thank you again.

Rich source for hypermobility and Ehlers Danlos
I am so grateful for this podcast and the medical information Dr. Bluestein and her fabulous range of guests provide. Thank you!

Bendy Bodies A
I so appreciate this podcast and its ability to bring complex subject matter in an accessible way!!!! THANK YOU, Dr. Linda Bluestein!!!! As a parent of an adult with hEDS, MCAS, POTS, and many other related conditions, I struggle on a daily basis to educate others, especially providers, and other skeptics in our lives about the multiple various medical conditions that my offspring deals with—on top of being gender non-binary, non-neuro-typical, short, and female presenting—ie, ripe for dismissal on multiple counts. I have shared your podcast and will continue to do so.

HELPFUL!!
This Doc knows her stuff. She's one of us Bendies so she gets it in a way that most providers can't. Super grateful for the pointers, insights, hacks that are bringing real change to my days and overall quality of life. Here's to learning and living well! Thank you, Dr. Bluestein and guests!

WOW! Must listen for EDS and related conditions
This podcast is so informative and educational. It changes lives because knowledge is power, and Dr Bluestein has design this podcast so everyone has access to expert info. Thank you so much!

Best information Ever on EDS
This podcast is just the best . I’ve learnt so much that not even the so called EDS experts in NZ know. I thank you so much for your time doing the podcast organising the guests esp Dr Chopra . His hacks are so great as are yours . Went out and bought some high lace boots and feet and legs feel way better . I’ve been everywhere for advice . Expensive orthotics etc . I should have realised that loving my riding style boots wasn’t just about their ease of slipping into .

Episode 72
Just listened to this episode on upper extremity issues. I learned so much. Why did my shoulder get worse with PT and message? Explained. I had questions on ring splints and painful muscles. Answered. This was great information.

Great podcast
Really appreciate the hacks! Love to hear even more from Dr. Chopra and other EDS gurus. It’s nice to hear them speak in a question and answer format vs a lecture.

Grateful!!
So grateful for every podcast that I can listen to live to if I miss one I can listen to them in the library. It is so hard to find information about co-morbilities and other issues for ourselves so we can pass on the information to our physicians. Most of our physicians do not understand or have knowledge about H-EDS and it’s many issues. So thank you so much for this podcast!! Mona