Bending my brain the right way way 👌

Having to navigate a new diagnosis of EDS in the UK NHS is pretty diabolical as they don’t recognise it well enough yet. I’m glad for the services provided for the symptoms but as the clinicians are not clued up, they can’t educate me as someone who has it.

Bendy bodies fills that void. It provides professional advice at multiple levels, ensuring it’s technical and bough for practitioners to learn how best to navigate this condition for/with their patients, with plenty of signposting for further info and resources.

However, you also provide evidence based, comprehensive information for those with the condition in laymen’s terms. Not condescending to them, but giving them an understanding of their bodies in terminology that makes sense to everyone.

You step over that academic/professional pomposity that so many have, to do what most meant to, to help those who need it. Excellent podcast. Fantastic presenter. Amazing resource for the likes of me, floating in a sea of chronic illness I now understand a little better, how to navigate. 👌🦓❤️